“I remember,” an oncologist told us, “the first time that a patient came in with a study I hadn’t seen. I knew I had a choice: did I dismiss it and say I’d read everything important and this wasn’t important or did I ask for a copy. I asked for a copy and discovered something I didn’t know about treating rare cancer. Since then, patients have taught me so much. This is their disease, their life, and many have family and friends who join them in putting endless hours into research. We have to see informed patients as a great resource.
Increasingly, treatment decisions are not just made between the person affected by a disease and the treating physician: policymakers, reimbursers, activists, and journalists often play a role.
A coalition will need to make the economic case for prevention or treatment in many developing economies and increasingly mature ones. They’ll need to show the impact on productivity or family savings or mitigate the impact of an ageing population. Clever press conferences and glossy brochures rarely work in the third decade of the twenty-first century. Hard work, hard data and solid alliances often do.
Hyderus specialises in designing actionable, effective and measurable international programmes to pilot, help adoption and measure impact…